So sorry it's been a while since the last update on ole Dave. There really isn't much to report. The last time I took him to his Dr. here in Memphis, Dr. Ledoux decided not to make a change to the settings. He wants us to do an experiment. Since David's speech has gotten worse since DBS he wants us to turn it off for a little while and see how his speech is. Apparently, turning it off for about 5 or 10 minutes is long enough to possibly see any difference. At the next appointment, which is in July, we will report back if we saw any difference at all. That will give him ideas of how to change the settings. But otherwise, his Dystonia doesn't seem any worse. We just need to get him standing up more so his bone mass doesn't shrink. Soon, we hope to get some Physical Therapy going.
We have so much to be thankful for. David has a great disposition and seems perfectly content to be home and play his computer games and watch his silly shows. With his easy going way, it's easy to let him and not make him do something active.
Sister Hannah's College Graduation
It's hard to believe that Hannah's college years are over! Seems like we just took her to Bryan just last year! We had a great time going to Dayton, TN for Hannah's graduation. We met my sister and my Dad there too. Here is proof that Hannah graduated!
Please Pray For Michael
I would like to ask you to pray for a new friend. Michael is 14 and has severe Dystonia. He and his parents live in St. Louis. When I went to see our new grandbaby in March I got to meet Michael and his parents. He had DBS surgery a few months before David. His doctors decided to take a more aggressive approach to the setting changes. Michael has not done well with the changes. He has been in and out of ICU for aspiration pneumonia, swallowing issues and breathing problems. He is now on a feeding tube. His mom is desperate for answers. Please remember Michael. I don't think he has the development delays that David has but he can't talk at all. He loves to get mail so if you want to send him a card let me know and I'll send you his address.
Thanks again for following our journey!